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of people living with rare and complex conditions
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Month: August 2017

Memo on existing integrated care practices and exploration of possible application areas for rare disease patients (2017)

August 25, 2017Editor

    The “Memo on existing integrated care practices and exploration of possible application areas for rare disease patients” was elaborated by the Centre for Social Innovation (ZSI) in the scope of their work on social policy innovation based structural reforms in the scope of the INNOVCare project. Download the Memo here.  

Methodology Report: The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania (2017)

August 24, 2017Editor

  The Methodology Report  “The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a randomised control trial of efficacy” was elaborated by the Centre for Social Innovation (ZSI) in the scope of the evaluation of the social impact of the INNOVCare pilot project in Romania.  Download the…

Recent Posts

  • Evaluation Report: The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a pilot randomised control trial of efficacy (2018)
  • Technical Note: Random Sampling and Random Allocation of the Participants of the INNOVCare pilot (2018)
  • Roadmaps for up-scaling. Possible pathways to patient-centred, holistic care for RD Patients and patients with complex needs in Austria, Romania and Spain (2018)
  • Report: Pilot of Implementing Case Management for Rare/Complex Conditions in Salaj County, Romania (2018)
  • Training Curricula for Case Managers for Rare Diseases (2018)

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