INNOVCare Resources

Evaluation Report: The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a pilot randomised control trial of efficacy (2018)

The evaluation report “The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a pilot randomised control trial of efficacy” was elaborated by the Centre for Social Innovation (ZSI) in the scope of the evaluation of the social impact of the INNOVCare pilot project in Romania. Download…

Technical Note: Random Sampling and Random Allocation of the Participants of the INNOVCare pilot (2018)

The technical note on “Random Sampling and Random Allocation of the Participants of the INNOVCare pilot” was elaborated by the Centre for Social Innovation (ZSI) in the scope of the evaluation of the social impact of the INNOVCare pilot project in Romania. Download the Technical Note here.

Roadmaps for up-scaling. Possible pathways to patient-centred, holistic care for RD Patients and patients with complex needs in Austria, Romania and Spain (2018)

The “Roadmaps for up-scaling. Possible pathways to patient-centred, holistic care for RD Patients and patients with complex needs in Austria, Romania and Spain” were elaborated by the Centre for Social Innovation (ZSI) in the scope of their work on social policy innovation based structural reforms in the scope of the INNOVCare project. Download the roadmaps here.

Report: Pilot of Implementing Case Management for Rare/Complex Conditions in Salaj County, Romania (2018)

The report on the Pilot of Implementing Case Management for Rare/Complex Conditions in Salaj County, Romania, which took place in the scope of INNOVCare, was prepared by the NoRo resource centre. Download the report here.

Training Curricula for Case Managers for Rare Diseases (2018)

The Training Curricula for Case Managers for Rare Diseases was developed by the NoRo resource centre during the pilot of implementing case management for rare diseases and complex conditions in the County of Salaj in the scope of INNOVCare. Download the training curricula for case managers here.

Scaling report: Scaling Innovative Care Delivery for Rare Diseases & Complex Conditions (2018)

The “Scaling report: Scaling Innovative Care Delivery for Rare Diseases & Complex Conditions” was elaborated by the Centre for Social Innovation (ZSI) in the scope of their work on social policy innovation based structural reforms in the scope of the INNOVCare project. Download the scaling report here.

Bridging the gaps between health and social care: results of the EU-funded project INNOVCare (2018)

Presentation of the results of the INNOVCare project, “Bridging the gaps between health and social care: results of the EU-funded project INNOVCare” Download the presentation here.

INNOVCare Recommendations (2018)

Based on the INNOVCare project’s outcomes, the project partners have developed recommendations to implement mechanisms that ensure integrated care and integrated service delivery, coordinated between health, social and community services. Download the recommendations here.

INNOVCare Project Presentation: Bridging the gaps between health, social and local services to improve care of people living with rare and complex conditions (2018)

General presentation and overview over the INNOVCare Project, “Bridging the gaps between health, social and local services to improve care of people living with rare and complex conditions”. Download the project presentation here.

Factsheet on Integrated Care for Rare Diseases (2018)

The outline for this factsheet on Integrated care for rare diseases was developed during the INNOVCare Workshop on Advancing holistic and innovative care for rare diseases and complex conditions in Cluj-Napoca, June 2017. Download the Factsheet here.