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Bridging the gaps between health, social and local services to improve care
of people living with rare and complex conditions
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Month: July 2018

Poster presented at ECRD 2018: Measuring the effects of a case management approach on the quality of life of rare and complex disease patients (2018)

July 13, 2018Editor

Poster on Measuring the effects of a case management approach on the quality of life of rare and complex disease patients, presented at ECRD2018 in Vienna by the Centre for Social Innovation (ZSI). Download the poster here.

Poster presented at ECRD 2018: Drivers and obstacles of integrated care in different national contexts (2018)

July 13, 2018Editor

Poster on drivers and obstacles of integrated care in different national contexts, presented at ECRD2018 in Vienna by the Centre for Social Innovation (ZSI). Download the poster here.    

Recent Posts

  • Evaluation Report: The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a pilot randomised control trial of efficacy (2018)
  • Technical Note: Random Sampling and Random Allocation of the Participants of the INNOVCare pilot (2018)
  • Roadmaps for up-scaling. Possible pathways to patient-centred, holistic care for RD Patients and patients with complex needs in Austria, Romania and Spain (2018)
  • Report: Pilot of Implementing Case Management for Rare/Complex Conditions in Salaj County, Romania (2018)
  • Training Curricula for Case Managers for Rare Diseases (2018)

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