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Bridging the gaps between health, social and local services to improve care
of people living with rare and complex conditions
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Month: August 2018

INNOVCare Recommendations (2018)

August 31, 2018Editor

Based on the INNOVCare project’s outcomes,  the project partners have developed recommendations to implement mechanisms that ensure integrated care and integrated service delivery, coordinated between health, social and community services. Download the recommendations here.  

INNOVCare Project Presentation: Bridging the gaps between health, social and local services to improve care of people living with rare and complex conditions (2018)

August 1, 2018Editor

General presentation and overview over the INNOVCare Project, “Bridging the gaps between health, social and local services to improve care of people living with rare and complex conditions”. Download the project presentation here.

Factsheet on Integrated Care for Rare Diseases (2018)

August 1, 2018Editor

The outline for this factsheet on Integrated care for rare diseases was developed during the INNOVCare Workshop on Advancing holistic and innovative care for rare diseases and complex conditions in Cluj-Napoca, June 2017. Download the Factsheet here.

Presentation held at ICIC 2018: Social and economic impact of a case management approach for people with rare and complex conditions in Salaj, Romania (2018)

August 1, 2018Editor

Presentation on the Social and economic impact of a case management approach for people with rare and complex conditions in Salaj, Romania, held at the International Conference on Integrated Care (ICIC) 2018 in Utrecht, Netherlands, by Karolinska Institutet.   Download the presentation here.

Poster presented at SHEA 2018: Social and economic impact of a case management approach for people with rare and complex conditions in Salaj, Romania (2018)

August 1, 2018Editor

Poster on the Social and economic impact of a case management approach for people with rare and complex conditions in Salaj, Romania, presented at the Conference of the Swedish Health Economy Association (SHEA) 2018 in Lund, Sweden, by Karolinska Institutet. Download the poster here.

Recent Posts

  • Evaluation Report: The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a pilot randomised control trial of efficacy (2018)
  • Technical Note: Random Sampling and Random Allocation of the Participants of the INNOVCare pilot (2018)
  • Roadmaps for up-scaling. Possible pathways to patient-centred, holistic care for RD Patients and patients with complex needs in Austria, Romania and Spain (2018)
  • Report: Pilot of Implementing Case Management for Rare/Complex Conditions in Salaj County, Romania (2018)
  • Training Curricula for Case Managers for Rare Diseases (2018)

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