The Advisory Group of the INNOVCare project is composed of 17 representatives of competent authorities from 14 countries across Europe.
This group follows the project and provides input and advice to the various activities of the project, including the pilot implementation in Romania and the activities focused on up-scaling the model care pathway to other European countries.
The Advisory Group will attend three meetings throughout the project, having the opportunity to share experiences and to exchange good practices as well as to contribute to the project development:
- 6-7 October 2016, Vienna, at the Zentrum für Soziale Innovation;
- 1-2 June 2017, Cluj Napoca, at the NoRo Resource Centre for Rare Diseases;
- 12-13 April 2018, Oslo, at the Frambu Resource Centre for Rare Diseases.
Composition of the Advisory Group
- Austria: Elke Kunar, Representative of the service for long-term care provision, Federal Ministry of Labour, Social Affairs and Consumer Protection
- Belgium: André Gubbels, Director general for disabled people, Federal Public Service for Social Security
- Croatia: Anica Ježić, Representative of the Ministry of Social Policy and Youth
- Czech Republic: Markéta Vanclová, Representative of the Ministry of Labour and Social Affairs
- Denmark: Matilde Munk, Advisor to the Office of Disabilities, National Board of Social Services
- Finland: Helena Kääriäinen, Research Professor, National Institute for Health and Welfare; Representative of Finland at the Commission Expert Group on Rare Diseases
- Italy: Silvia Manea, Medical Doctor of Rare Diseases Coordinating Centre and Rare Diseases Register of Veneto Region
- Latvia: Ieva Malniece, Director, Clinic of Medical Genetics and Prenatal Diagnostics, The Children’s University Hospital of Riga
- Luxembourg : Yolande Wagener, Head of Division for School Medical Services, Ministry of Health; Representative of Luxembourg at the Commission Expert Group on Rare Diseases
- Norway: Stein Are Aksnes, General Director, National Advisory Unit on Rare Disorders
- Romania: Emilia Severin, Researcher, Department of Genetics of the Carol Davila University of Medicine and Pharmacy; Representative of Romania at the Commission Expert Group on Rare Diseases
- Romania: Monica Solomie, Representative of the National authority for people with disabilities, Ministry of Work, Family, Social Protection and Elderly
- Spain: Encarna Guillen, Head of Unit of Medical Genetics, Paediatric ward, Hospital Clínico Universitario Virgen de la Arrixaca, Murcia, Chief investigator IMIB-Arrixaca / GCV CIBERER-ISCIII
- Spain: Ester Sarquella Casellas, Connected Health and Care Business Development Director for Southern Europe, Tunstall Healthcare
- Sweden: Veronica Wingstedt de Flon, General Manager, National Agency for Rare Diseases
- United Kingdom: Anne Hendry, Clinical Lead for Integrated Care, Scottish Government
- United Kingdom: Edmund Jessop, Medical Advisor, National commissioning Group of the National Health Service; Representative of the United Kingdom at the Commission Expert Group on Rare Diseases