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Bridging the gaps between health, social and local services to improve care
of people living with rare and complex conditions
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Bridging the gaps between health and social care: results of the EU-funded project INNOVCare (2018)

November 20, 2018Editor

Presentation of the results of the INNOVCare project, “Bridging the gaps between health and social care: results of the EU-funded project INNOVCare”   Download the presentation here.

Factsheet on Integrated Care for Rare Diseases (2018)

August 1, 2018Editor

The outline for this factsheet on Integrated care for rare diseases was developed during the INNOVCare Workshop on Advancing holistic and innovative care for rare diseases and complex conditions in Cluj-Napoca, June 2017. Download the Factsheet here.

Case managers for rare diseases: Roles and training outlines (2018)

April 17, 2018Editor

These outlines are an outcome of the INNOVCare Workshop in Advancing Holistic and Innovative Care for Rare Diseases and Complex Conditions in Cluj-Napoca, Romania, June 2017, providing examples for the roles and training outlines for case managers for rare diseases. Download the outlines here.

Memo on existing integrated care practices and exploration of possible application areas for rare disease patients (2017)

August 25, 2017Editor

    The “Memo on existing integrated care practices and exploration of possible application areas for rare disease patients” was elaborated by the Centre for Social Innovation (ZSI) in the scope of their work on social policy innovation based structural reforms in the scope of the INNOVCare project. Download the Memo here.  

Recent Posts

  • Evaluation Report: The effects of a case management approach on the quality of life of rare disease patients in Salaj, Romania: a pilot randomised control trial of efficacy (2018)
  • Technical Note: Random Sampling and Random Allocation of the Participants of the INNOVCare pilot (2018)
  • Roadmaps for up-scaling. Possible pathways to patient-centred, holistic care for RD Patients and patients with complex needs in Austria, Romania and Spain (2018)
  • Report: Pilot of Implementing Case Management for Rare/Complex Conditions in Salaj County, Romania (2018)
  • Training Curricula for Case Managers for Rare Diseases (2018)

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