Resource centres are a one-stop shop service specifically designed for people living with a rare disease. A European network of resource centres for rare diseases is under creation with the support of the INNOVCare project… (read more)
A case manager is a form of integrated service at an individual level. The case manager coordinates the services for the user, especially for users facing complex and long-term needs… (read more)
RareResourceNet – the European Network of Resource Centres for Rare Diseases – aims at accelerating the development and the implementation of holistic high quality care pathways… (read more)