Frambu Resource Centre, Oslo, Norway
Joint Workshop of the EU-Funded projects INNOVCare (2015-2018, DGEMP) and RD-Action (2015-2018, DGSANTE)
Date: 12-13 April 2018
- To discuss and present case studies on the role of Centres of Expertise and European Reference Networks in supporting integrated care for rare diseases;
- To exchange on the progress of INNOVCare’s pilot of case management for rare diseases: implementation and evaluation;
- To discuss other key-issues to support the implementation of integrated health-social care for people living with a rare disease across Europe, with a focus on sustainability.
Attendees will include representatives of policy makers - including national/regional competent authorities INNOVCare Advisory Group and former members of the Commission Expert Group on Rare Diseases - social services, healthcare providers from European Reference Networks, patient representatives and academics.
For more information on this workshop, please contact [email protected]